The Changing Locus of Health Data Production and Use: Patient-Generated Health Data, Observations of Daily Living, and Personal Health Information Management

Abstract

Despite the growing attention of researcher, healthcare managers and policy makers, data gathering and information management practices are largely untheorized areas. In this work are presented and discussed some early-stage conceptualizations: Patient-Generated Health Data (PGHD), Observations of Daily Living (ODLs) and Personal Health Information Management (PHIM). As I shall try to demonstrate, these labels are not neutral rather they underpin quite different perspectives with respect to health, patient-doctor relationship, and the status of data.